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“What did you say you can’t eat?” my friend asked me in shock as we casually strolled along a river path. I recently had decided to tackle my ankylosing spondylitis (AS) diagnosis with radical changes to my lifestyle. I tried to think of ways to explain the drastic cuts…

Second in a two-part series. (Photos by Andrea Wyckoff) Thank you for reading part two of my radon mine series. If you haven’t yet, please read part one, “My Experience With Radon Mine Therapy for Ankylosing Spondylitis.” It explains how I ended…

When I recently was diagnosed with ankylosing spondylitis, I was confronted with complicated terminology that initially overwhelmed me. Klebsiella pneumoniae, molecular mimicry, cytokines, tumor necrosis factor-alpha — the list of complicated terms seemed endless. “Good grief,” I thought, “I’m just an ordinary human being. All of these terms are…

First in a two-part series. In 2014, I took a road trip to Montana to receive experimental treatments in the underground radon mines. (Photos by Andrea Wyckoff) Visiting the “radon resorts” of Montana was actually one of the best solo vacations I…

On Saturday, Nov. 2, 2019, I was informally diagnosed with ankylosing spondylitis. I had already unknowingly suffered the symptoms of AS for years. Realizing I was suffering from an incurable disease stopped me dead in my tracks. I felt a strong compulsion to immediately try to stop whatever was…

I showed up at my doctor’s office with stickers all over my back.  The pain usually was most severe in the middle of the night. Yet, I was always surprised by how difficult it was to recall my nighttime pain in…

I am honored to be joining the team here at Ankylosing Spondylitis News. I have been living with ankylosing spondylitis (AS) for the past 20 years, so I am very familiar with the ups and downs of having a rare disease crash land into your life and snatch control…

At 3:30 a.m., I sat in bed gasping for air with acute pain in my chest. Like every other night, I had gone to bed at 10 p.m. after completing my usual routine, which started a few hours before bedtime. My goal was always to get as many…

Have you ever watched the movie “Finding Nemo?” If you have, you might recall the scene in which Dory, the optimistic, forgetful, and friendly fish, tells her newfound fish friend Marlin, a clownfish who just lost his only son, Nemo, to “just keep swimming.” Dory’s simple three-word phrase reminds…

Some people just don’t “get” chronic illness, and they can be pretty cruel about it — or thoughtless, at the very least. It’s hard when people don’t understand what it’s like for those with ankylosing spondylitis (AS) to live with daily pain and the pressures of financing medication,…