Janneke Phung is a 36-year-old mother to three boys and is married to a wonderfully supportive husband. Janneke lives in Calgary, Alberta, where she takes full advantage of being surrounded by both prairies and mountains. Running her home, feeding her family, homeschooling her 6-year-old and keeping her 3-year-old twins out of trouble is her full-time job. In October 2019, after years of health struggles and needing to advocate for herself, she was diagnosed with ankylosing spondylitis, which prompted her to make drastic changes to her lifestyle. Her motto is to “Just Keep Swimming” in the face of adversity, with hope in perseverance and passion about advocating for others who struggle with rare diseases.
When I recently was diagnosed with ankylosing spondylitis, I was confronted with complicated terminology that initially overwhelmed me. Klebsiella pneumoniae, molecular mimicry, cytokines, tumor necrosis factor-alpha — the list of ... Read more
On Saturday, Nov. 2, 2019, I was informally diagnosed with ankylosing spondylitis. I had already unknowingly suffered the symptoms of AS for years. Realizing I was suffering from an incurable ... Read more