Just Keep Swimming – a Column by Janneke Phung

“Hey, did you know that redheads feel pain differently?” I asked my husband after stumbling upon some research earlier in the day. As a redhead who’s often experienced all sorts of pain, I wondered if my redheadedness was to blame for my constant ailments. My ankylosing spondylitis (AS) symptoms…

The statements “I have ankylosing spondylitis” and “I feel great!” hardly seem to go together. But for me, they do. That wasn’t always the case. In a previous column, I described my nightly struggle with this invisible illness. I had nights when I couldn’t pick my twin infants up…

“I love you, dud!” I hollered after my 3-year-old son as he blissfully skipped back to play with his brothers. (It’s unfortunate that while I had meant to say, “I love you, bud!” or “I love you, darling!” it had come out as a rather unflattering mixture of the two…

Have you ever felt like you drew the short end of the stick in life? Do other people seem to have more reasons to be joyful than you do? When we are diagnosed with an incurable and progressive disease it can feel unfair. Sometimes we may wonder if a…

“What did you say you can’t eat?” my friend asked me in shock as we casually strolled along a river path. I recently had decided to tackle my ankylosing spondylitis (AS) diagnosis with radical changes to my lifestyle. I tried to think of ways to explain the drastic cuts…

When I recently was diagnosed with ankylosing spondylitis, I was confronted with complicated terminology that initially overwhelmed me. Klebsiella pneumoniae, molecular mimicry, cytokines, tumor necrosis factor-alpha — the list of complicated terms seemed endless. “Good grief,” I thought, “I’m just an ordinary human being. All of these terms are…

On Saturday, Nov. 2, 2019, I was informally diagnosed with ankylosing spondylitis. I had already unknowingly suffered the symptoms of AS for years. Realizing I was suffering from an incurable disease stopped me dead in my tracks. I felt a strong compulsion to immediately try to stop whatever was…

I showed up at my doctor’s office with stickers all over my back.  The pain usually was most severe in the middle of the night. Yet, I was always surprised by how difficult it was to recall my nighttime pain in…

At 3:30 a.m., I sat in bed gasping for air with acute pain in my chest. Like every other night, I had gone to bed at 10 p.m. after completing my usual routine, which started a few hours before bedtime. My goal was always to get as many…

Have you ever watched the movie “Finding Nemo?” If you have, you might recall the scene in which Dory, the optimistic, forgetful, and friendly fish, tells her newfound fish friend Marlin, a clownfish who just lost his only son, Nemo, to “just keep swimming.” Dory’s simple three-word phrase reminds…