European Initiative Targets Diagnosis, Treatment of Rare Diseases
A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while ... Read more
Updates
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Minimally Invasive Procedure Can Treat Spinal Fractures Due to AS, Study Says
Percutaneous interbody fusion (PIF), a minimally invasive and potentially safer procedure, is feasible to stabilize spinal fractures due to ankylosing spondylitis (AS) and ... Read more -
I Hiked Too Hard and Pushed Myself Too Far — and That’s OK
The other day, my friends, my boyfriend, and I traveled from New York City, where I live, to Minnewaska State Park Preserve in New ... Read more -
Ixekizumab Eases Pain and Fatigue, Improves AS Patients’ Quality of Life, Phase 3 Trials Show
Under-the-skin treatment with ixekizumab leads to early and sustained reductions in pain, fatigue, and inflammation, as well as significant improvements in sleep and quality ... Read more -
TNF Inhibitors Safer Than Previously Thought for AS Patients, Study Says
TNF inhibitors, or blockers, are safer than previously thought for patients with ankylosing spondylitis (AS) and may have fewer unwanted side effects than ... Read more
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World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients
It wasn’t until Gordana Loleska’s son David was 14 years old that doctors in ... -
On Getting Defensive About Living with a Chronic Disease
Some people just don’t get it. Maybe others try, but the majority don’t. If ... -
LINC00311 Levels May Predict Disease Recurrence in Ankylosing Spondylitis Patients
LINC00311, a type of long non-coding RNA molecule, is overexpressed in patients with ankylosing ... -
3 Things I’ve Learned About Traveling with Ankylosing Spondylitis
Travel is particularly brutal when I’m in a flare-up. When I’m feeling OK, it’s ... -
NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala
A violinist with vasculitis, two Texas politicians and a pharmaceutical company whose marijuana-derived therapy ... -
Cosentyx Slightly Better Than NSAIDs in Reducing Disease Progression, Data Analysis Shows
While both Cosentyx (secukinumab) and nonsteroidal anti-inflammatory drugs (NSAIDs) have been found to reduce ...
Cosentyx Leads to Long-Term Improvement in AS Patients, Phase 3 Trial Shows
News
Results from a Phase 3 clinical trial show that treatment with Cosentyx (secukinumab) led to fast, significant, and sustained symptom improvement in patients with active ankylosing spondylitis (AS). Improvements were particularly noticeable in patients who had never ... Read more