Updates

October 21, 2020October 21, 2020
Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its ... Read more
October 19, 2020October 19, 2020
COVID-19 Lockdown Led to Fewer Swiss Patients Adhering to Treatment With Little Impact on Disease Activity

A short interruption in in-person medical visits due to the COVID-19 pandemic significantly decreased treatment adherence but had little impact on disease activity in ... Read more
October 12, 2020October 12, 2020
AS Pain Linked With Depression, Anxiety, Stress, Study Finds

People with ankylosing spondylitis (AS) often endure considerable psychological distress — including depression, anxiety, and stress — that is related to their experience ... Read more
October 6, 2020October 6, 2020
Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their favorite photographs in a calendar ... Read more
September 30, 2020September 28, 2020
Ankylosing Spondylitis Is Not Your Fault

Some people just don’t “get” chronic illness, and they can be pretty cruel about it — or thoughtless, at the very least. It’s hard ... Read more

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March 7, 2018March 7, 2018

Cosentyx Leads to Long-Term Improvement in AS Patients, Phase 3 Trial Shows

News

Results from a Phase 3 clinical trial show that treatment with Cosentyx (secukinumab) led to fast, significant, and sustained symptom improvement in patients with active ankylosing spondylitis (AS). Improvements were particularly noticeable in patients who had never ... Read more

Updates

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

COVID-19 Lockdown Led to Fewer Swiss Patients Adhering to Treatment With Little Impact on Disease Activity

AS Pain Linked With Depression, Anxiety, Stress, Study Finds

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Ankylosing Spondylitis Is Not Your Fault

Subscribe to our mailing list

Study Supports Efficacy of Cosentyx for Patients in China, Other Countries

Obesity Increases Risk of Worse Overall Health in AS, Study Reports

Cosentyx Effective in Active nr-axSpA, Phase 3 PREVENT Trial Shows

Same But Different Photo Contest Celebrates People With Rare Diseases

AbbVie Seeks FDA, EMA Approvals of Rinvoq for Active AS

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

TNF Inhibitors Significantly Slow Bone Damage in AS, Long-term Study Finds

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

IL-17 Inhibitors Can Ease Symptoms But Raise Infection Risk, Review Shows

New Streaming Channel Showcases Rare Disease Films

nr-axSpA Given Diagnostic Code on International Classification of Diseases

Year’s Use of Cimzia Can Lead to Sustained Remission, Phase 3b Trial Shows

EU Approves Under-the-skin Remsima Injectable for 5 Autoimmune Disorders

Hulio, Humira Biosimilar, Approved But Not Available Until 2023

CHMP Favors At-home Injection Form of Remsima for Europe

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Simponi Effective, Including in Patients Who Tried Other TNF Blockers, Data Show

Cosentyx Approved in US to Treat Active nr-axSpA

Nepexto, Enbrel Biosimilar, Approved to Treat Patients in Europe

Coalition Will Address Racial Disparities in Rare Disease Communities

FDA Approves Taltz for Non-radiographic Axial Spondyloarthritis

UK Study Evaluating COVID-19 Lockdown Effect on Musculoskeletal Health

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Cosentyx Leads to Long-Term Improvement in AS Patients, Phase 3 Trial Shows

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

COVID-19 Lockdown Led to Fewer Swiss Patients Adhering to Treatment With Little Impact on Disease Activity

AS Pain Linked With Depression, Anxiety, Stress, Study Finds

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Ankylosing Spondylitis Is Not Your Fault

Subscribe to our mailing list

Study Supports Efficacy of Cosentyx for Patients in China, Other Countries

Obesity Increases Risk of Worse Overall Health in AS, Study Reports

Cosentyx Effective in Active nr-axSpA, Phase 3 PREVENT Trial Shows

Same But Different Photo Contest Celebrates People With Rare Diseases

AbbVie Seeks FDA, EMA Approvals of Rinvoq for Active AS

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

TNF Inhibitors Significantly Slow Bone Damage in AS, Long-term Study Finds

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

IL-17 Inhibitors Can Ease Symptoms But Raise Infection Risk, Review Shows

New Streaming Channel Showcases Rare Disease Films

nr-axSpA Given Diagnostic Code on International Classification of Diseases

Year’s Use of Cimzia Can Lead to Sustained Remission, Phase 3b Trial Shows

EU Approves Under-the-skin Remsima Injectable for 5 Autoimmune Disorders

Mindfulness Linked to Reduced Fatigue-associated Disability in Arthritis

Hulio, Humira Biosimilar, Approved But Not Available Until 2023

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

CHMP Favors At-home Injection Form of Remsima for Europe

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Simponi Effective, Including in Patients Who Tried Other TNF Blockers, Data Show

Cosentyx Approved in US to Treat Active nr-axSpA

Nepexto, Enbrel Biosimilar, Approved to Treat Patients in Europe

Coalition Will Address Racial Disparities in Rare Disease Communities

FDA Approves Taltz for Non-radiographic Axial Spondyloarthritis

UK Study Evaluating COVID-19 Lockdown Effect on Musculoskeletal Health

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say