Updates

March 14, 2019
Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will suffer deeply if Britain leaves the European Union (EU), as ... Read more
March 13, 2019March 13, 2019
Anti-TNF Alpha Therapy Improves Exercise Capacity After Four Months of Treatment, Study Suggests

Anti-TNF alpha therapy is able to significantly restore ankylosing spondylitis patients’ capacity to exercise after a treatment period of four months, a small study ... Read more
March 13, 2019March 12, 2019
My Shingles Story: How It Happened and What I Did in Response

I was put on biologic medicine to treat ankylosing spondylitis a little over a year ago. I started the biweekly injections and slathered ... Read more
March 6, 2019March 6, 2019
High Levels of C-reactive Protein Can Predict Risk for Future Ankylosing Spondylitis, Study Finds

High levels of C-reactive protein, a marker of systemic inflammation, at the onset of back pain can help predict which patients go on to ... Read more
March 6, 2019March 5, 2019
NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

Rare diseases affect about 30 million Americans — roughly the same number as those with type 2 diabetes. Yet only 5 percent of the ... Read more

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News

Anti-TNF-Alpha Therapies Linked to Reduced Lumbar Spine Deformities, Study Shows
March 4, 2019March 4, 2019
Treatment with anti-TNF-alpha therapies can lead to improved lumbar spine curvature and better clinical ...
A Wellness Journey - a Column by Lisa Marie Basile, Columns

3 Ways to Get Out of an Ankylosing Spondylitis Slump
February 27, 2019February 26, 2019
Life can be affirming and beautiful, but it also can be hard, random, and ...
News

WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April
February 25, 2019February 25, 2019
The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government ...
News

Vienna to Host RARE2019 Meeting on Rare Diseases
February 25, 2019February 20, 2019
About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city ...
A Wellness Journey - a Column by Lisa Marie Basile, Columns

What Ankylosing Spondylitis Taught Me About Myself
February 20, 2019February 19, 2019
Getting diagnosed with ankylosing spondylitis (AS) wasn’t just about figuring out (finally!) which disease ...
News

Plant Compound Emodin Could be Used as Treatment for AS, Study Says
February 18, 2019February 18, 2019
Emodin, a plant compound used in traditional Chinese medicine, has potent anti-inflammatory and anti-rheumatic ...

Tiny RNA Molecule a Potential Diagnostic Biomarker for Ankylosing Spondylitis, Study Says
February 13, 2019February 13, 2019
Levels of a tiny RNA molecule, called miR-214, correlate with ankylosing spondylitis disease activity ...
How to Stay Informed About Ankylosing Spondylitis
February 13, 2019February 12, 2019
I’m a wellness writer and editor. Some of my work has appeared in publications ...
Risk for Dementia Higher in Ankylosing Spondylitis Patients, Study Suggests
February 11, 2019February 11, 2019
Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
February 11, 2019
Two Bone Metabolism-related Proteins May Help Determine Ankylosing Spondylitis Risk, Study Suggests
February 6, 2019February 6, 2019
TNF Inhibitors Improve Bone Mineral Density but Not Vertebral Fractures in AS Patients, Study Says
February 4, 2019February 4, 2019

Levels of RNA Molecule a Potential Biomarker for Ankylosing Spondylitis, Study Suggests
January 30, 2019January 30, 2019
Analyzing the circulating levels of a specific RNA molecule, known as MEG3, may be used as ...
Ankylosing Spondylitis Patients Have Lower Health-Related Quality of Life, Study Shows
January 28, 2019January 28, 2019
Attending My First Ankylosing Spondylitis Meetup
January 23, 2019January 25, 2019
TNF-Alpha Blocking Therapy Can Ease Hip Issues in AS Patients, Study Suggests
January 21, 2019January 21, 2019

Risk of Atrial Fibrillation Increases in Certain Ankylosing Spondylitis Patients, Study Finds
January 9, 2019January 9, 2019
Ankylosing spondylitis (AS) patients younger than 40 and those treated with tumor necrosis factor ...
This Beautiful Documentary Does Justice to Those with Ankylosing Spondylitis
January 9, 2019January 8, 2019
Simponi Lowers Incidence of Acute Anterior Uveitis, Phase 4 Study Shows
January 7, 2019January 7, 2019

News

Novartis, TrialSpark Collaborate to Maximize Patient Access to Clinical Trials, Therapy Development
January 2, 2019January 2, 2019
TrialSpark, a technology company that works to increase access and integrate trial participation into patients’ everyday ...
News

Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish
December 20, 2018December 20, 2018
Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures ...
A Wellness Journey - a Column by Lisa Marie Basile, Columns

Using Aqua Workouts to Soothe Ankylosing Spondylitis Pains
December 19, 2018December 18, 2018
Around the time of my “official” AS diagnosis (I stress “officially,” because most of ...
A Wellness Journey - a Column by Lisa Marie Basile, Columns

My Ankylosing Spondylitis Diagnosis Journey, Part 2
December 12, 2018January 7, 2019
Second in a series. Read part one. And then the symptoms hit. By 30, ...
A Wellness Journey - a Column by Lisa Marie Basile, Columns

The Joys and Perils of Turning to Online Groups for Support
December 5, 2018December 4, 2018
When I was diagnosed with ankylosing spondylitis (AS), one of the first things I ...
News

TNF-alpha Inhibitors May Increase Eosinophil Levels in Ankylosing Spondylitis Patients, Study Suggests
December 3, 2018December 3, 2018
Use of TNF-alpha inhibitors reduces inflammation and increases levels of eosinophils — a type ...

March 7, 2018March 7, 2018

Cosentyx Leads to Long-Term Improvement in AS Patients, Phase 3 Trial Shows

News

Results from a Phase 3 clinical trial show that treatment with Cosentyx (secukinumab) led to fast, significant, and sustained symptom improvement in patients with active ankylosing spondylitis (AS). Improvements were particularly noticeable in patients who had never ... Read more

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