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July 18, 2019July 18, 2019

European Initiative Targets Diagnosis, Treatment of Rare Diseases

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A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while also accelerating the development of ... Read more

July 18, 2019July 18, 2019

Minimally Invasive Procedure Can Treat Spinal Fractures Due to AS, Study Says

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Percutaneous interbody fusion (PIF), a minimally invasive and potentially safer procedure, is feasible to stabilize spinal fractures due to ankylosing spondylitis (AS) and complicated by pseudarthrosis, a Chinese study ... Read more

July 11, 2019July 11, 2019

Ixekizumab Eases Pain and Fatigue, Improves AS Patients’ Quality of Life, Phase 3 Trials Show

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Under-the-skin treatment with ixekizumab leads to early and sustained reductions in pain, fatigue, and inflammation, as well as significant improvements in sleep and quality of life, as reported by ... Read more

July 8, 2019July 8, 2019

TNF Inhibitors Safer Than Previously Thought for AS Patients, Study Says

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TNF inhibitors, or blockers, are safer than previously thought for patients with ankylosing spondylitis (AS) and may have fewer unwanted side effects than non-steroidal anti-inflammatory drugs (NSAIDs), the standard ... Read more

July 5, 2019July 4, 2019

World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

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It wasn’t until Gordana Loleska’s son David was 14 years old that doctors in their native North Macedonia diagnosed his kidney, vision, and hearing problems as Alport syndrome. Although ... Read more

June 27, 2019June 27, 2019

LINC00311 Levels May Predict Disease Recurrence in Ankylosing Spondylitis Patients

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LINC00311, a type of long non-coding RNA molecule, is overexpressed in patients with ankylosing spondylitis and is associated with worse treatment outcomes and higher likelihood of disease recurrence, a ... Read more

June 25, 2019

NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

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A violinist with vasculitis, two Texas politicians and a pharmaceutical company whose marijuana-derived therapy helps kids with Dravet syndrome were among winners of the 2019 Rare Impact Awards. Officials ... Read more

June 24, 2019June 25, 2019

Cosentyx Slightly Better Than NSAIDs in Reducing Disease Progression, Data Analysis Shows

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While both Cosentyx (secukinumab) and nonsteroidal anti-inflammatory drugs (NSAIDs) have been found to reduce disease progression in people with ankylosing spondylitis, analysis of trial data shows that the anti-rheumatic ... Read more

June 20, 2019June 20, 2019

Bimekizumab Can Improve Outcomes of AS Patients, Phase 2b Trial Finds

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Inhibiting both IL-17A and IL-17F signaling molecules with the investigational antibody bimekizumab can effectively improve the outcomes of patients with ankylosing spondylitis, according to clinical results. The study, “Dual ... Read more

June 20, 2019

Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

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Europe’s umbrella organization for 800 rare disease associations has developed a sweeping initiative to help the continent’s 30 million rare disease patients and their caregivers learn about their conditions, ... Read more

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