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March 20, 2019March 20, 2019

Study Examines Differences in Gut Contents of Male, Female Ankylosing Spondylitis Patients

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Gender-based differences in fecal metabolites in ankylosing spondylitis patients may provide clues about differences regarding male versus female disease progression. The study with that finding, “GC-MS-based fecal metabolomics reveals gender-attributed ... Read more

March 18, 2019March 18, 2019

Diet, Air Pollution May Play Role in Ankylosing Spondylitis Activity, Study Suggests

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A high-fat diet and long-term exposure to air pollution are both associated with worse outcomes in patients with ankylosing spondylitis, a study shows. The study, “Effect of food intake ... Read more

March 14, 2019

Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

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Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will suffer deeply if Britain leaves the European Union (EU), as scheduled, at the end of ... Read more

March 13, 2019March 13, 2019

Anti-TNF Alpha Therapy Improves Exercise Capacity After Four Months of Treatment, Study Suggests

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Anti-TNF alpha therapy is able to significantly restore ankylosing spondylitis patients’ capacity to exercise after a treatment period of four months, a small study suggests. After treatment, patients in the ... Read more

March 6, 2019March 6, 2019

High Levels of C-reactive Protein Can Predict Risk for Future Ankylosing Spondylitis, Study Finds

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High levels of C-reactive protein, a marker of systemic inflammation, at the onset of back pain can help predict which patients go on to develop ankylosing spondylitis, a study ... Read more

March 6, 2019March 5, 2019

NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

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Rare diseases affect about 30 million Americans — roughly the same number as those with type 2 diabetes. Yet only 5 percent of the estimated 7,000 rare diseases known ... Read more

March 4, 2019March 4, 2019

Anti-TNF-Alpha Therapies Linked to Reduced Lumbar Spine Deformities, Study Shows

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Treatment with anti-TNF-alpha therapies can lead to improved lumbar spine curvature and better clinical outcomes in patients with ankylosing spondylitis, study shows. The study, “Radiologic parameters of ankylosing spondylitis ... Read more

February 25, 2019February 25, 2019

WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

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The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government officials is planned for April 10–12 in a Washington, D.C., suburb. Some 1,200 people have ... Read more

February 25, 2019February 20, 2019

Vienna to Host RARE2019 Meeting on Rare Diseases

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About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city early next month for the 2nd International Congress on Advanced Treatments in Rare Diseases. The ... Read more

February 18, 2019February 18, 2019

Plant Compound Emodin Could be Used as Treatment for AS, Study Says

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Emodin, a plant compound used in traditional Chinese medicine, has potent anti-inflammatory and anti-rheumatic properties that, when combined with autophagy inhibitors, may be a promising therapeutic strategy to alleviate symptoms ... Read more

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