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August 19, 2019August 19, 2019

Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

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Imagine living your whole life with a painful disease so rare that only 25 others worldwide have what you have. And that you’re one of just six such people ... Read more

August 12, 2019August 12, 2019

Tonsillitis May Predispose People to Ankylosing Spondylitis, Study Suggests

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People who are diagnosed with ankylosing spondylitis (AS) are more likely to have had tonsillitis than those without this disease, a study found, suggesting that tonsillitis might predispose a ... Read more

August 5, 2019August 5, 2019

Yisaipu, Biosimilar of Enbrel, Will be Available as Pre-filled Syringe in China

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Yisaipu, a biosimilar of Enbrel (etanercept), has been approved in China as a pre-filled syringe to treat ankylosing spondylitis, among other conditions, announced the treatment’s developer, Sunshine Guojian Pharmaceutical, ... Read more

August 1, 2019

Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

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Screening newborns for genetic diseases with treatments that can prevent crippling or deadly progression, especially for rare disorders, has a ways to go in the United States. No state ... Read more

August 1, 2019

Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

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Oklahoma suffers more tornadoes than any other state, has the highest per-capita rate of women in U.S. prisons, ranks second in the number of teen births per 100,000 teenage ... Read more

August 1, 2019August 1, 2019

Patients at Higher Risk of Self-Harm After Ankylosing Spondylitis Diagnosis, Study Finds

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Self-harm is more common in people diagnosed with ankylosing spondylitis compared with the general population, a study reveals, suggesting the need for better mental health monitoring and support for ... Read more

July 29, 2019July 29, 2019

FDA Approves Humira Biosimilar Hadlima for Treatment of Ankylosing Spondylitis

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Hadlima (adalimumab-bwwd), a biosimilar to AbbVie’s Humira, has been approved by the U.S. Food and Drug Administration (FDA) for the treatment of ankylosing spondylitis. The therapy was also approved ... Read more

July 25, 2019July 25, 2019

Italian Analysis Finds Cosentyx Is Cost-effective for AS, Other Conditions

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In Italy, Cosentyx (secukinumab) is a cost-saving treatment for ankylosing spondylitis, as well as for psoriatic arthritis and moderate to severe plaque psoriasis, according to a new study. The ... Read more

July 22, 2019July 22, 2019

Hip, Knee Replacement Surgeries More Frequent in Older AS Patients than the General Population

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Total hip replacement surgery, or hip arthroplasty, has doubled in older patients with ankylosing spondylitis (AS), outpacing the rates in the general population over recent years, a U.S. population-based ... Read more

July 18, 2019July 18, 2019

European Initiative Targets Diagnosis, Treatment of Rare Diseases

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A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while also accelerating the development of ... Read more

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