News

March 26, 2020March 26, 2020

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

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The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 because of the coronavirus disease COVID-19 pandemic. ... Read more

March 23, 2020March 23, 2020

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

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Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy remains confident that the Paris-based nonprofit she chairs will see ... Read more

March 19, 2020March 19, 2020

Fatigue in Ankylosing Spondylitis Warrants Greater Focus, Study Says

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Worse sleep quality, higher disease activity, and a greater waist-to-hip ratio (WHR) predict fatigue among patients with ankylosing spondylitis (AS), a study in China found. Medical personnel should be ... Read more

March 16, 2020March 16, 2020

Anti-Inflammatories Linked to Lower Use of Psychotropic Medications in AS Patients

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Taking certain anti-inflammatory medications is associated with lower use of antidepressants and benzodiazepine-related hypnotics (BRH) among people with ankylosing spondylitis (AS) and other inflammatory disorders, a nationwide study from ... Read more

March 12, 2020March 12, 2020

2nd Humira Biosimilar Seen as Effective and Safe in Phase 3 Trial in China

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HS016, a biosimilar candidate of Humira (adalimumab), was seen to have equivalent safety and effectiveness at treating adults with active ankylosing spondylitis (AS) in a Phase 3 trial in China. Researchers ... Read more

March 10, 2020March 10, 2020

Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

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The number of treatments for children with rare diseases has grown over the past decade, according to a new study. However, despite the increase, nearly 7,000 rare diseases are still ... Read more

March 9, 2020March 9, 2020

TNF Blockers Show Real-life Benefits in Patients, Study Finds

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Treatment with TNF inhibitors eased disease activity and improved physical function for people with axial spondyloarthritis (axSpA), according to a real-world study from Italy. The extent of functional improvement ... Read more

March 5, 2020March 5, 2020

FDA Approves Higher Cosentyx Dose for Active AS

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The U.S. Food and Drug Administration (FDA) has approved a label update to Novartis’ Cosentyx (secukinumab), doubling the previously recommended dose to 300 mg for adults with active ankylosing ... Read more

March 5, 2020March 6, 2020

Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

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In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign last month asking patients to describe what makes them rare. Running Feb. 7–29, the ... Read more

March 2, 2020March 2, 2020

Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

News

Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will be available free-of-charge from Elsevier. The offer runs through April 30, ... Read more

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