Since I was diagnosed with ankylosing spondylitis (AS) at the age of 26, one of the main issues I’ve faced is loneliness. Missing out on social engagements when I’m in a flare, giving up hobbies that I love, and being isolated while in the throes of chronic pain have…

When you’re searching for others who understand the AS experience, you probably want to see something real — not something sanitized or generated by pharmaceutical groups. There comes a point when articles and information shared by doctors just feel a little empty, devoid of the real perspective. You ask yourself:…

I was anxious as I walked into my first ankylosing spondylitis meetup, sponsored by the Spondylitis Association of America. I had no idea what type of people would be there or the severity of their disease. I worried that I’d be too young or too old, or too mobile,…

When I was diagnosed with ankylosing spondylitis (AS), one of the first things I did was join numerous AS groups on Facebook. We’re talking groups for women with AS, groups for AS-related diets, groups for fitness with AS, and groups for local AS meetups. Then there was the group…

After my diagnosis of ankylosing spondylitis (AS), I realized didn’t know anyone else with the disease. I was feeling exceptionally lost and alone. I turned to YouTube for community and education, and it was super helpful. First, I could watch people with AS perform stretches and yoga moves! It’s one thing to…

Having a great foundation and support system is vital to the success of anything mighty you are trying to achieve. Being diagnosed with ankylosing spondylitis (AS) is no different. In fact, it is probably even more important to have a strong foundation of support and community. One of the main…

I think it’s safe to say, heading into the New Year, that we all have goals we plan to accomplish. I recommend letting the old things pass away and starting anew. Sure, we still will deal with doctor’s appointments and we still have ankylosing spondylitis (AS) or axial…