Joint Journey — Jemma Newman

My husband, Dave, and I both have ankylosing spondylitis (AS), and when we’re struggling to live with the disease, even simple things can seem difficult. A normally easy activity, like commuting to work on the train, can…

Note: This column describes the author’s husband’s experiences with meloxicam. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Sleeping beside my husband, Dave, who has ankylosing spondylitis…

The drizzle swept down on us during a stormy night in Perth, Western Australia, last month as my husband, Dave, and I joined some friends outside a cozy downtown bar. The babysitter was paid for, our stomachs were full…

I’m excited to share an update on my ankylosing spondylitis (AS) journey, because I’m experiencing minimal pain and stiffness at the moment. I’ve slept peacefully through the night for the last week, without tossing and turning in…

It’s no wonder it can take such a long time to diagnose ankylosing spondylitis (AS), in a process that involves a lot of confusion along the way. Maybe your family is surprised when you explain that your…

Note: This column discusses depression. Resources for help are listed at the end of the column. Can I tell you a secret? I had a mini-panic attack when I started writing this column about my journey with ankylosing…

Last night, my husband, Dave, and I were sitting outside, drinks in hand, with a sliver of moon hanging above us in the deepening indigo sky. We both gasped and said, “Ooooh, wow,” as a shooting star flared briefly…

Last month, my son turned 5, which also means I’ve had ankylosing spondylitis (AS) symptoms for five years. As he enthusiastically blew out the candles on his candy-covered birthday cake, I had flashbacks to the time shortly after…

It helps when someone understands what it’s like to live with ankylosing spondylitis (AS). My only sister, Angie Lole, and I live on different sides of the world (she’s in the U.S., and I’m in Australia), but we…

My first symptoms of ankylosing spondylitis (AS) weren’t the commonly discussed sacroiliac pain, which is at the base of the spine. Instead, I was waking up in the wee hours of the night with intense burning in…

As I slowly loaded packets of minced beef and frozen salmon onto the supermarket checkout conveyor belt, I heard a loud and impatient sigh from behind me. Another customer was standing close by, brows furrowed, with a partly full…

When I was pregnant before I was diagnosed with ankylosing spondylitis (AS), I was pretty tired. Particularly at the end of my pregnancy, when I could hardly take a breath, my organs were all squished, and my body…