It helps when someone understands what it’s like to live with ankylosing spondylitis (AS). My only sister, Angie Lole, and I live on different sides of the world (she’s in the U.S., and I’m in Australia), but we have something that links us closely: We’ve both been diagnosed…
My first symptoms of ankylosing spondylitis (AS) weren’t the commonly discussed sacroiliac pain, which is at the base of the spine. Instead, I was waking up in the wee hours of the night with intense burning in the middle of my spine, ribs, and shoulder blades. After 2…
As I slowly loaded packets of minced beef and frozen salmon onto the supermarket checkout conveyor belt, I heard a loud and impatient sigh from behind me. Another customer was standing close by, brows furrowed, with a partly full basket dangling from one manicured hand. I was at the tail…
When I was pregnant before I was diagnosed with ankylosing spondylitis (AS), I was pretty tired. Particularly at the end of my pregnancy, when I could hardly take a breath, my organs were all squished, and my body was expending its resources on growing another human being, I needed…
Confession time: I wasn’t always a big advocate for gut health. I’m a skeptical person, so I mentally categorized it with unproven alternative therapies and fad diets. I’ve always eaten pretty healthily, but I didn’t make the connection that what I ingest — even if generally considered healthy — could…
Last night, as I was drifting off to sleep, I was picturing swimming underwater with my diving tank on my back. Imagine sinking down through cool, shimmering water while kicking your fins to propel yourself slowly toward the white, sandy bottom of the ocean. Incredible coral formations are close by,…
Lately, one of my favorite shows has been “The Mandalorian,” a Disney+ original spinoff series from the epic “Star Wars” chronicles. Every time I watch an episode, it makes me think about the importance of friends when you are facing challenges, such as a chronic disease. The hero…
A few weeks ago, I experienced what I’d call one of my most painful ankylosing spondylitis (AS) flares. I want to share this experience not to complain, but to talk freely about the difficulties of this chronic disease. The Spondylitis Association of America article “Examining Flares…
Last in a series. Read part one. Welcome back to my ultimate roundup of tools that help my husband, Dave, and I manage our ankylosing spondylitis (AS). Come on in to my virtual home, and let’s continue the tour! Some of these tools might seem basic…
First in a series. The pain and stiffness of ankylosing spondylitis (AS) ebb and flow like the tide. Some days are calm and relatively pain-free, while others are awash in a crashing wave of joint and muscle pain. My husband, Dave, and I both have AS, and we’ve…
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