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September 9, 2019September 9, 2019

Qigong May Reduce AS Patients’ Fatigue, Morning Stiffness, Study Suggests

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Baduanjin qigong training, a traditional Chinese exercise, may reduce fatigue and morning stiffness in people with ankylosing spondylitis (AS), according to a recent pilot study. The results, “A 12-week Baduanjin ... Read more

September 5, 2019September 5, 2019

FDA Approves Lilly’s Taltz for the Treatment of Active Ankylosing Spondylitis

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Eli Lilly‘s Taltz (ixekizumab) has been approved by the U.S. Food and Drug Administration (FDA) for the treatment of adults with active ankylosing spondylitis (AS), also known as radiographic ... Read more

September 5, 2019

At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

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Developing gene therapies for rare diseases is one thing. Creating gene-edited “designer babies” is quite another. German legal expert Timo Minssen outlined the potentially explosive ethical landmines surrounding such ... Read more

September 2, 2019August 30, 2019

‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

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Rare diseases deeply affect not only the children who experience them, but also their healthy brothers and sisters, as their parents can attest. Two entries in November’s “Disorder: ... Read more

August 29, 2019August 29, 2019

Pilates Training May Be Beneficial for AS Patients, Study Finds

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A physical intervention program based on pilates training may be beneficial for people with ankylosing spondylitis, a study finds. The research, “One Year of Pilates Training for Ankylosing Spondylitis: ... Read more

August 26, 2019August 26, 2019

Almost Half of AS Patients May Experience Mild Hearing Loss, Study Suggests

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Mild hearing loss is common among people with ankylosing spondylitis, particularly in older patients regardless of disease severity, researchers have found. The study, “Hearing loss in ankylosing spondylitis,” was ... Read more

August 22, 2019August 22, 2019

AS Places Large Financial Burden on German Healthcare System, Study Finds

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Ankylosing spondylitis places a large financial burden on the German healthcare system, especially the costs of certain medications and patient hospitalizations, a study finds. The results, “Ankylosing spondylitis causes ... Read more

August 19, 2019August 19, 2019

Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

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Imagine living your whole life with a painful disease so rare that only 25 others worldwide have what you have. And that you’re one of just six such people ... Read more

August 12, 2019August 12, 2019

Tonsillitis May Predispose People to Ankylosing Spondylitis, Study Suggests

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People who are diagnosed with ankylosing spondylitis (AS) are more likely to have had tonsillitis than those without this disease, a study found, suggesting that tonsillitis might predispose a ... Read more

August 5, 2019August 5, 2019

Yisaipu, Biosimilar of Enbrel, Will be Available as Pre-filled Syringe in China

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Yisaipu, a biosimilar of Enbrel (etanercept), has been approved in China as a pre-filled syringe to treat ankylosing spondylitis, among other conditions, announced the treatment’s developer, Sunshine Guojian Pharmaceutical, ... Read more

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