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May 27, 2019May 24, 2019

Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

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RaDaR, the catchy new name for the U.S. government-run Rare Diseases Registry Program, aims to help patient advocacy groups with limited resources build their own disease registries. The site ... Read more

May 23, 2019May 23, 2019

Age, Education Level Can Affect One’s Ability to Cope with AS, Study Finds

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Progressing disease, older age, and lower education can significantly affect ankylosing spondylitis patients’ ability to cope with the challenges and burden associated with their illness, a study has found. ... Read more

May 17, 2019May 15, 2019

Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

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With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails millions of Americans whose rare diseases have already been ... Read more

May 16, 2019May 16, 2019

Ankylosing Spondylitis Patients Face Greater Risk of Depression, Study Finds

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Having ankylosing spondylitis more than doubles the risk of developing depression, and the presence of additional chronic conditions exacerbates this risk, a South Korean population-based study reports. Older female ... Read more

May 2, 2019May 2, 2019

Lower Dose of TNF Blockers Nearly As Effective and Safer for SpA Patients in Remission, Trial Suggests

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Reducing the dose of TNF blockers by about half is nearly as effective as the standard dose taken by ankylosing spondylitis patients who are in stable remission, a clinical trial shows. Reducing ... Read more

April 24, 2019April 24, 2019

Older Female Ankylosing Spondylitis Patients With Dyslipidemia, More Prone to Osteoporosis

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Overall, patients with ankylosing spondylitis (AS) are more likely to develop osteoporosis compared to the general population, a new study shows. However, the risk is particularly high for AS ... Read more

April 22, 2019April 22, 2019

Simponi or Remicade Treatment Lowers Healthcare Use, Increases Work Productivity in AS Patients, Study Says

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A six-month course of treatment with Janssen‘s Simponi (golimumab) or Remicade (infliximab) significantly reduced the use of healthcare resources and increased work productivity in patients with ankylosing spondylitis (AS), according ... Read more

April 18, 2019April 18, 2019

AS Patients More Likely to Develop Venous Thromboembolism, Study Says

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Patients with ankylosing spondylitis are more likely to develop venous thromboembolism — a condition in which a blood clot that forms in a vein can cause a heart attack or stroke — ... Read more

April 15, 2019April 15, 2019

Stopping Infliximab Can Cause Relapses in Ankylosing Spondylitis Patients, Study Says

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Stopping treatment with infliximab (brand names, Remsima, Remicade) can lead to relapses in people with ankylosing spondylitis (AS) who are in stable clinical remission, according to a 12-month study. Reintroduction of infliximab ... Read more

April 11, 2019April 11, 2019

Kidney Issues Should be Considered While Using TNF-Alpha Inhibitors

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Despite being rare, kidney complications should be considered in patients with ankylosing spondylitis treated with inhibitors of tumor necrosis factor-alpha (TNF-alpha), such as Remicade (infliximab), according to a case report. ... Read more

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